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STORIES

Picture of Pam Medley

Pam Medley

My story is from 30 years ago but is so much like the many other stories I am reading here today. An otherwise healthy, active, well-adjusted child complaining of a different kind of pain. Parents who instinctively know there is something [...]

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Picture of Katie Darby

Katie Darby

At some point our life changes. Sometimes the change is so big, so dramatic, that we are left completely impacted and inevitably we ourselves are changed forever. Cancer has had a surprisingly [...]

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Picture of Pam Medley

Pam Medley

My story is from 30 years ago but is so much like the many other stories I am reading here today. An otherwise healthy, active, well-adjusted child [...]

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Picture of Sierra

Sierra Hewson

I was 15 years old and had just started 10th grade when I was diagnosed with Ewing sarcoma. My symptoms started off slowly with some pain in my shoulder when I slept and [...]

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Picture of Morgan Levins

Morgan Levins

April 20, 2016, we received the news that every parent dreads. Our daughter Morgan was diagnosed with Ewing sarcoma. Up until that day, Morgan was your typical 12 year old girl [...]

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George Raye

George Raye

Our son George Raye, was diagnosed with Ewing sarcoma in his right fibula in September 2015. George had complained of swelling and aching in the area above his ankle on and off for over 2 years. He underwent X-rays [...]

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Picture of Karlee Gogol

Karlee Gogol

Karlee was first diagnosed with Ewing sarcoma in late November of 2013. Like most Ewings parents, our oncology team told us there wasn't very much information about Ewings on the Internet. Trusting in the oncology [...]

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Picture of Mark MacMillan

Mark MacMillan

Mark had just celebrated his 52nd birthday on February 14, and like any 52 year old who has been in the workforce since they were 17 years old, you start looking forward to retirement from your job and opening a new [...]

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Picture of Noah

Noah Llewellyn

As a parent, I could never imagine giving up, not fighting for my child's life... it is incomprehensible.  But life has a funny way of forcing us to face the incomprehensible.  You see, there was a day when I was forced to my very knees praying to the heavens that the end would be quick [...]

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Picture of Darah

Darah Joseph

On June 17th, 2011, at only 12 years old, Darah was running the 100 m sprint Manitoba Provincial Track and Field Qualifiers when she crossed the finish line in a close second place. All of a sudden, from the sidelines, we could hear a "snap" and she tumbled to the concrete track. Judging by the [...]

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Picture of Joseph Gallinger

Joseph Gallinger

Our son Joseph was diagnosed with a pelvic Ewing Sarcoma and lung metastasis on both lungs in August of 2012. Joe was 13 years old and had a 13 cm tumour growing off of his sacrum. As of August 2013 the tumour has shrunk to about 5cm and scans still show spots [...]

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Picture of Kristy-Ann

More than just a girl.

Kristy-Ann was more than just the girl I imagined spending the rest of my life with. She was the love of my life, my best friend, my soul mate and my biggest source of inspiration. Ewing sarcoma has taken the best thing to ever walk into my life away from me. A lot of people [...]

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Picture of Janessa

Janessa Mikleus

Our daughter Janessa was diagnosed with Ewing sarcoma in early 2011.She passed away on August 23rd, 2012. She was such a trooper; it is our medical system that failed her and our family. The length of time it takes to diagnose the cancer, lack of communication in the [...]

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Picture of Jason Gauweiler

Just Another Road Trip

As they say, "all good things come to an end." For the past four years, my wife and I have planned and organized a memorial ride inspired by our son, Jason. About 8 years ago, Jason and I discussed plans for this ride. We knew a memorial ride would be the type of ride we [...]

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Picture of Kristy-Ann, Graduation

Kristy-Ann Dini

Kristy-Ann was diagnosed with Ewing sarcoma in November of 2011. But her story begins much earlier than that. As we've read so many times with Ewing sarcoma, it started with soreness in her leg which we concluded was just muscle pain. But although it went away for a while, it reoccurred again but the pain [...]

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Picture of Paul Kokelj

Paul Kokelj

A sucker punch to the back: a very damaging type of hit with the chances of a fair fight becoming greatly reduced. Thus, Paul’s fight against his cancer, Ewing sarcoma, was never fair right from the start. It was in his back, the pelvic area to be exact, that his tumor decided to reside, expand [...]

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Picture of Reid Pernica

The strongest love of all

It is eight years since Reid died of cancer. He was only nineteen. He loved to fly, and had just earned his wings when he got the call. Oh yes, on the day of his funeral, Reid witnessed the fly-past performed by his pilot buddies over his resting-place. He grinned his pleasure in a sun that suddenly appeared, [...]

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Picture of Carly

Carly Hillis

My sweet angel Carly was only 14 years old when she lost her battle with Ewing sarcoma. She started to have pains in her right leg when she was 12 years old and we took her to the doctor several times to be told it was growing pains. She had flat feet and her one [...]

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Picture of Reid Pernica

Love Lost

How do I possibly begin to write the story of my son's life? A life cruelly cut short by a cancer called Ewing sarcoma. How can I express what an incredibly brave and special person he was, how deeply he was loved by his friends and family, and how many lives he touched in such [...]

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Picture of Cameron Flanigan

Cameron Flannigan

Our story begins in spring of 2008. Cameron was eighteen and loved to play soccer. He began to complain about a pain in his upper left leg and buttock. I paid little attention, since I was convinced that he had hurt his leg playing soccer. Off and on over [...]

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Picture of Justin Hodge

Justin Hodge

October 15, 2009 will forever be ingrained in my memory. It was the day my son Justin came to me and said, "Mom, I have something wrong with my leg. It's really stiff. Weird!" I really didn't take it too seriously because he was the type of kid who skateboarded off of rooftops as a [...]

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